David is the chair of the 22q11 Deletion Syndrome APPG in Westminster.
22q11DS or DiGeorge as it is more commonly known, is a condition present from birth that can cause a range of lifelong problems, including heart defects and learning difficulties. The severity of the condition varies. Some children can be severely ill and very occasionally may die from it, but many others may grow up without realising they have it. DiGeorge syndrome is caused by a problem with a person's genes called 22q11 deletion. It isn't usually passed on to a child by their parents, but is in a few cases. More information on DiGeorge syndrome can be found online here and at the Max Appeal.
David has been trying to help raise awareness of this condition. 22q11 is the second most common chromosomal disorder after Down's syndrome and has been historically misdiagnosed, which can lead to additional health problems.